SDS Events - Global

  • POSTPONED April 19-22, 2022! 10th International Congress on Shwachman-Diamond Syndrome
    19 kwi 2023, 09:00 – 23 kwi 2023, 13:00
    Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times.
    Udostępnienia
  • SickKids Canada - National MFM Virtual Patient and Family Conference
    30 kwi, 12:00 – 18:00 GMT-4
    Virtual
    The National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
    Udostępnienia
  • Fun-Run-Walk October 2020
    24 paź 2020, 07:00 GMT-4 – 01 lis 2020, 23:00 GMT-5
    Virtual run/walk, location of your choice
    It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
    Udostępnienia
  • Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    12 lip 2020, 14:00 GMT-4 – 16 lip 2020, 10:00 GMT-4
    Camp Sunshine, Cosco, ME, USA, Cosco, ME
    SDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
    Udostępnienia
  • Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    29 lut 2020, 14:00 – 17:00 GMT-5
    Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USA
    SDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
    Udostępnienia
  • SDS Registry Family Day in Boston, MA, US
    15 wrz 2019, 08:00 – 16:00 GMT-4
    Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155
    Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
    Udostępnienia
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