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SDS Events - Global
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Global SDS Family Coffee Chat
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Upcoming and Past Events
Wiele datniedz., 12 styVirtual event12 sty 2025, 15:00 – 17:00Virtual eventMonthly virtual get-together to build community and support.
niedz., 20 paźhttps://www.sdsalliance.org/sds-pops20 paź 2024, 13:00 – 17:00https://www.sdsalliance.org/sds-popsThe only global, virtual meeting of its kind to provide patients, caregivers, scientists, physicians, and all other stakeholders with an opportunity to connect and discuss all things related to Shwachman-Diamond Syndrome research and advocacy.
niedz., 19 majVirtual. Register at sdsalliance.org/cce19 maj 2024, 14:00 – 15:00 GMT-4Virtual. Register at sdsalliance.org/cce
sob., 13 kwifree virtual event13 kwi 2024, 13:00 – 19:00 GMT-4free virtual eventThis meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.
sob., 20 majVirtual event20 maj 2023, 10:00 – 15:00 GMT-4Virtual eventThe first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
wt., 18 kwiRobinson College, Cambridge, UK18 kwi 2023, 09:00 GMT-4 – 21 kwi 2023, 13:00 GMT-4Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UKThis Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
pt., 24 marParis24 mar 2023, 09:00 – 16:00 CETParis, Paris, FranceNous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
sob., 30 kwiVirtual30 kwi 2022, 12:00 – 18:00 GMT-4VirtualThe National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
sob., 24 paźVirtual run/walk, location of your choice24 paź 2020, 07:00 GMT-4 – 01 lis 2020, 23:00 GMT-5Virtual run/walk, location of your choiceIt's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
niedz., 12 lipCamp Sunshine, Cosco, ME, USA12 lip 2020, 14:00 GMT-4 – 16 lip 2020, 10:00 GMT-4Camp Sunshine, Cosco, ME, USA, Cosco, MESDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
sob., 29 lutPainting with a Twist, North Andover, MA29 lut 2020, 14:00 – 17:00 GMT-5Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USASDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
niedz., 15 wrzBoston, MA15 wrz 2019, 08:00 – 16:00 GMT-4Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
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