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Covid 19

COVID-19 Resources
for SDS families and beyond

Covid 19

Governmental Resources

WHO (World Health Organization) COVID-19 Information

CDC (US Center for Disease Control) COVID-19 Information

US Government (CDC & Whitehouse) COVID-19 Information

Canadian Government


European Centre for Disease Prevention and Control: COVID-19 Information
with links to Country Specific Websites and Phone Numbers



General COVID-19 Resources

Taking care of kids during the COVID-19 pandemic

An example oh how to talk to children about the pandemic, while hearing and respecting them​

COVID-10: How to be safe and resilient 

A free course developed by Northeastern University.

Aggregated public health resources related to COVID-19

How to protect yourself during COVID-19 when your loved one can’t stay home

An article by

General educational videos 




SDS Specific and Related Resources


Facebook Live (and recorded) sessions by the Shwachman-Diamond Syndrome Foundation

SDS UK: Guidance letter by the Medical Advisory Board and additional resources by the Trustees

COVID-19 Back-to-school guidance by UT Southwestern physicians (via Children's Health)

AAMDS: The Aplastic Anemia and MDS International Foundation: Guidance for Bone Marrow Failure Patients to Protect Against Coronavirus (COVID-19)

Complex Child Magazine: COVID-19 resources for medically complex children

French resources from IRIS (a primary immune deficiency organization)


Dental health and oral hygiene recommendations during COVID-19 pandemic

By dentists at Authority Dental



Via the Ehler-Danlos Society

American Heart Association: Choose Your Own Workout

Mainstream gyms and programs online, free for a while

Mental Health


CDC (US Center for Disease Control) COVID-19 > Stress & Anxiety


NAMI (National Alliance on Mental Illness): COVID-19 Resource and Information Guide

Cancer Support Community: What Cancer Patients, Survivors, and Caregivers Need to Know About the Coronavirus

Parenting Support and Child Abuse Prevention

Staying Social Safely


The Mighty: Online Events during the COVID-19 crisis


Our Odyssey: Young Adult Virtual Meet-Up

(Connecting young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life.)



Via the Ehler-Danlos Society

Science & Medicine, Research & Development

Yale: An Illustrated scientific Overview (Video) 

COVID-19 Treatment and Vaccine Tracker

By FasterCures / Milken Institute:

Americal College of Physicians: COVID-19 Information for Internists

ASH: American Society of Hematology: COVID-19 Resources


CDC: Use of Cloth Face Coverings to Help Slow the Spread of COVID-19

Make Masks: a website to coordinate hand-made cotton mask making and receiving (US)

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