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Translation Disclaimer

Shwachman-Diamond Syndrome Alliance TRANSLATION DISCLAIMER

Last Revised: July 2022

Thank you for your interest in the Shwachman-Diamond Syndrome Alliance, Inc., a 501(c)(3) public charity. We are glad to have you as part of our community. These terms (these “Terms“) and disclaimer apply to your use of www.SDSAlliance.org and any related websites (the “Site”) of the Shwachman-Diamond Syndrome Alliance (“SDS Alliance,” “SDSA” “we,” “us” or “our“).

Together, we can continue to advance knowledge, research, awareness, education, and support for all those living with SDS and related conditions everywhere around the world. The SDS Alliance is working hard to produce global events, translate materials into multiple languages, and is working to translate core content and printable materials. Making conferences and resources more accessible worldwide is a long-term goal.

 

Written and text resources are translations of the original in English for information purposes only, translated by software (such as Google Translate) or by volunteers. In case of a discrepancy, the English original will prevail.

Accepting these Terms

 

If you access or use the Site, it means you agree to be bound by all of the terms below. Please read all of the terms before you use the Site. If a term does not make sense to you, please let us know. If you don’t agree to all of the terms below, you may not use the Site.

 
Disclaimer 

 

THIS SERVICE MAY CONTAIN TRANSLATIONS POWERED BY GOOGLE. GOOGLE DISCLAIMS ALL WARRANTIES RELATED TO THE TRANSLATIONS, EXPRESS OR IMPLIED, INCLUDING ANY WARRANTIES OF ACCURACY, RELIABILITY, AND ANY IMPLIED WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE AND NONINFRINGEMENT.

The SDS Alliance website has been translated for your convenience using translation software powered by Google Translate. Reasonable efforts have been made to provide an accurate translation, however, no automated translation is perfect nor is it intended to replace human translators. Translations are provided as a service to users of the SDS Alliance website, and are provided "as is." No warranty of any kind, either expressed or implied, is made as to the accuracy, reliability, or correctness of any translations made from English into any other language. Some content (such as images, videos, Flash, etc.) may not be accurately translated due to the limitations of the translation software.

The official text is the English version of the website. Any discrepancies or differences created in the translation are not binding and have no legal effect for compliance or enforcement purposes. If any questions arise related to the accuracy of the information contained in the translated website, refer to the English version of the website which is the official version.

Volunteer Translations

 

In addition to automatic translations, the SDS Alliance may ask volunteers to assist with translations, either from scratch or editing Google Translations. Volunteers are usually native speakers of the target language, but not professionally trained translators. We appreciate their time and efforts toward making our website, conferences and meetings, social media, and printed materials accessible globally. All translations are for informational purposes. In case of discrepancy, the English version will prevail.

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Shwachman-Diamond Syndrome Alliance Inc.

Social:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441, Woburn, MA 01888

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The Shwachman-Diamond Syndrome Alliance (SDS Alliance) is a 501(c)(3) nonprofit organization dedicated to building a world where Shwachman-Diamond Syndrome (SDS) is a manageable condition and all patients and their families can thrive - through driving research and engaging in advocacy and education.

 

The SDS Alliance brings together patient families, researchers, clinicians, and other diverse stakeholders to better understand, diagnose, and treat this devastating cancer predisposition genetic disorder. The SDS Alliance was launched in 2020 by the parents of a child with SDS, who are biomedical researchers and entrepreneurs.

 

The SDS Alliance’s leadership and scientific & medical advisors are experienced clinicians and researchers focused on combining the patient-family perspective with solutions based on the best available scientific evidence.

 

Families from around the world are fundamental to accelerating the SDS Alliance’s mission to improve outcomes for all SDS patients, especially populations from diverse backgrounds who don’t have possible stem-cell donor matches. The SDS Alliance intentionally elevates the voices of individuals from diverse backgrounds, the LGBTQ+ community, people with disabilities, and marginalized groups, as they bring critical insight and advance the SDS Alliance’s mission.

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